After a couple of weeks of tumor board meetings and no new information, we seem to be making some progress today. I got an email from Karen earlier this evening; it’s looking as though they will address the tumors in Leigh’s neck first as these are now the priority . She has emailed Dr. Kebebew and asked for a surgery date.
We have to start taking (and reporting) blood pressure 4 times a day, and once we get a surgery date, they will start him on the blood pressure medication to get that as well controlled as possible.
I will update as soon as I know more, and hopefully it won’t be as long as the last time!
Thank you all for your continued thoughts, prayers, love, and support! ❤